Cerebral Palsy Parents’ Knowledge, Attitude, and Behavior at Dr. Hasan Sadikin General Hospital Bandung 2014
Abstract
Background: Cerebral palsy (CP) as a non-progressive syndrome of motor function and posture disturbance is caused by the abnormality or damage on the brain during its development. Children with CP usually have motor, sensory, communication, and intellectual disturbances. Medical rehabilitation is important; however, the environmental aspect is also crucial for their development. Parents as their caregivers may have good knowledge to assist their children during rehabilitation. This study aimed to explore the knowledge, attitude, and behavior among parents with CP children.
Methods: This study was descriptive quantitative study and conducted at the Physical Medicine and Rehabilitation Clinic of Dr. Hasan Sadikin General Hospital Bandung during September to October 2014. Parents of CP children were asked to complete a questionnaire that was specifically designed for this study after their consent was obtained.
Results: From a total of 31 parents, 51.6% had good knowledge about CP; 58.1% had good attitude toward CP children, and 51.6% had good behavior while taking care of their children.
Conclusions: The majority of parents with CP children have good knowledge, attitude, and behavior towards CP children. The knowledge of risk factors of cerebral palsy are poor, therefore, it is necessary for doctors and therapists to provide more education sessions on the risk factors and other related topics about cerebral palsy.
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Swaiman KF, Ashwal S, Ferriero DM, Schor NF. Cerebral palsy. In: Swaiman KF, Wu YW, editors. Swaiman’s pediatric neurology. 5th ed. Edinburgh: Elsevier Saunders; 2012. p. 999–1008.
Verschuren O, Wiart L, Hermans D, Ketelaar M. Identification of facilitators and barriers to physical activity in children and adolescents with cerebral palsy. J Pediatr. 2012;161(3):488–94.
Aran A, Shalev RS, Biran G, Gross-Tsur V. Parenting style impacts on quality of life in children with cerebral palsy. J Pediatr. 2007;151(1):56–60.
Bagnara C, Bajraszewski E, Carne R, Fosang A, Kennedy R, Ong K, et al. Cerebral palsy an information guide for parents. 5thed. Melbourne: The Royal Children’s Hospital; 2008.p. 7–9.
Raina P, O’Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. J Am Acad Pediatr. 2005;115(6):626–36.
Wang HY, Jong YJ. Parental stress and related factors in parents of children with cerebral palsy. Kaohsiung J Med Sci. 2004;20(7):334–40.
Gupta A, Singhal N. Positive perceptions in parents of children with disability. DCID Journal. 2004;15(1):22–35.
Park MS, Chung CY, Lee KM, Sung KH, Choi IH, Kim TW. Parenting stress in parents of children with cerebral palsy and its association with physical function. J Pediatr Orthop B. 2012;21(5):452–6.
Soekidjo Notoadmodjo. Promosi kesehatan dan perilaku kesehatan. Jakarta: Rineka Cipta; 2012.p. 47–8.
Nimbalkar S, Raithatha S, Shah R, Panchal DA. A qualitative study of psychosocial problems among parents of children with cerebral palsy attending two tertiary care hospitals in Western India. ISRN Family Med. 2014;2014:769619.
Olawale OA, Deih AN, Yaadar RK. Psychological impact of cerebral palsy on families: The African perspective. J Neurosci Rural Pract. 2013;4(2):159–63.
Arora SK, Aggarwal A, Mittal H. Impact of an educational film on parental knowledge of children with cerebral palsy. Int J Pediatr. 2014;2014:573698.
Huang YP, Kellett M, St John W. Cerebral palsy: experiences of mother after learning their child’s diagnosis. J Adv Nurs. 2010;66(6):1213–21.
Brown RT, Wiener L, Kupst MJ, Brennan T, Behrman R, Compas BE, et al. Single parenting and children with chronic illness: an understudied phenomenon. J Pediatr Psychol. 2008;33(4):408–21.
Davis E, Shelly A, Waters E, Boyd R, Cook K, Davern M, et al. The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child Care Health Dev. 2010;36(1):63–73.
DOI: https://doi.org/10.15850/amj.v7n2.1790
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